ABCD Exchange : August - September 1999 : QuickScan - News in Brief

Upfront - Discipline for Inadequate Pain Management in OR
Resources - Maryland Palliative Care Hotline
President's Letter - Teaching Professionals about Reform
On the Hill - Pain Relief Promotion Act
Arts - Still Life in Milford

News and Notes on End of Life Care

New York - The Project On Death In America (PDIA) continues to walk the walk for improving end-of-life care by awarding one million dollars to fund eight new faculty scholars, and another $300,000 to the first six fellows in PDIA’s arts and humanities initiative, to which the organization has committed one million dollars. In the last five years, PDIA has appointed 58 faculty scholars in 36 medical schools and two nursing schools in the U.S., and four Canadian medical schools. The new group of scholars will focus on vulnerable populations, including African Americans and children. Among the new scholars is Joanne Wolfe, M.D., M.P.H. of the Dana Farber Cancer Institute; Wolfe and her colleagues participated in the 1997 Breakthrough Series on Improving Care at the End of Life. Fellowship recipients receive of up $150,000 for two years for projects that disseminate models of good care, develop new models for improved care, and create new approaches to the education of health professionals. The deadline for the next round of faculty scholar applications is January 6, 2000. Arts and humanities applicants must submit applications by January 7, 2000. Guidelines and applications can be downloaded from the PDIA website at www.soros.org/death.

Hackensack, NJ - Hackensack University Medical Center is seeking proposals for When Cure Is Not the Goal: Palliative Care Across the Long-Term Care Continuum--Questions, Controversies, Practicalities and Possibilities. Funded by The Fan Fox and Leslie R. Samuels Foundation, Inc., the project will award grants ranging from $10,000 to $125,000 to not-for-profit groups in New York City. Funded projects will aim to foster better palliative care and end-of-life services for individuals requiring long-term care in an array of settings. The effort will be aimed at designing and implementing model programs, applying scientifically sound interventions and educational agenda, and studying relevant policy and administrative issues. An RFP is due out in November 1999 with awards to be made during Summer 2000. For more information or to obtain an RFP, contact program coordinator Barbara Vaitovas at 201.883.0667 or e-mail bvaitovas@compuserve.com.

Washington, DC - A coalition of patient advocacy groups received a landmark ruling from the Health Care Financing Administration (HCFA) applying the federal Patient Self-Determination Act to the California Pain Patients Bill of Rights. The ruling means that patients in California must be informed of their right to adequate pain treatment. According to the Compassion in Dying Federation, enforcing the ruling "will give patients the information they need to demand better pain treatment and highlight problems in existing federal and state laws that discourage doctors from aggressive pain management." Kathryn Tucker, legal affairs director for Compassion in Dying, wrote the original letter, which ABCD and other groups signed. HCFA Administrator Nancy-Ann Min DeParle wrote in HCFA’s reply, "Because the term ‘medical care’ encompasses the provision of pain treatment, it follows that patients must be informed of any rights they have under state law to make decisions concerning pain treatment."

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This content is provided by Americans for Better Care of the Dying. For more information, visit www.abcd-caring.org.