ABCD Exchange : June - July 1999 : QuickScan - News in Brief

Upfront - Proposed Federal Bills
President's Letter - Serious and Complex Illness
On the Hill - Pain Relief Promotion Act of 1999
Lunch Bunch - Pharmacists Improving Care
Gatherings - Death in Prison
Resources - Training Video

News and Notes on End-of-Life Care

New York, NY - Fatigue is a common and often debilitating symptom for cancer patients, and others facing serious and complex illnesses. To learn more about this symptom, which has seldom been studied, the Department of Pain and Palliative Care at Beth Israel Medical Center has launched a new program that includes a clinical Fatigue Practice, slated to open later this summer, patient and provider education programs, and research. Among the educational elements are an online interactive survey on fatigue, which individuals can complete and submit, and receive almost instant feedback and recommendations. For updates and information, visit the department’s website, www.stoppain.org.

New York, NY - Two major national magazines recently featured stories about end-of-life care issues. The June 14 issue of Newsweek included, "When Someone Is Alive, But Not Living," by Don Udall, cousin of politician Mo Udall, who spent the final six years of his life in a near-vegetative state caused by Parkinson’s and a head injury. Because Udall had no healthcare advance directive and had appointed no healthcare power of attorney, doctors and families had to guess at what the congressman might have wanted. To honor Udall, his cousin has created a foundation called CARED (Concerned Americans for a Responsible Exit With Dignity), which will encourage lawmakers to create a national repository for advance directives.

The July issue of Ladies Home Journal featured a special report on the Hugh Finn case. Finn was severely brain damaged and had little chance of recovery. When his wife, Michele, decided to remove her husband’s feeding tube, the state of Virginia, as well as other members of the Finn family, took the matter to the State Supreme Court. The story, "Let My Husband Die," chronicles Michele Finn’s struggle to remove the feeding tube. Finn’s sister, Karen, described the turmoil this decision created among everyone involved, and told LHJ, "We’re all good people and we all loved Hugh. Unfortunately, that’s put us at odds." Michele Finn told the reporter that she has no doubts that she made the right decision. "Absolutely none," she said.

New Orleans, LA - In a keynote speech to the annual meeting of the American College of Physicians-American Society of Internal Medicine, Donald M. Berwick, M.D., director of the Institute for Healthcare Improvement, highlighted twenty steps internists can take to improve end-of-life care for their own patients. The list, which ABCD helped to compile, includes straightforward suggestions for how to talk to patients about their hopes and fears, how to discuss advance care planning, ways to improve continuity of care, and other important concerns. For an insightful article, read, "Helping Patients Find Their Way to ‘A Good Death,’" on the ACP-ASIM website, www.acp-asim.org For the complete list of steps, visit ABCD’s website - download the factsheet and leave a copy with your doctor at your next office visit.

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This content is provided by Americans for Better Care of the Dying. For more information, visit www.abcd-caring.org.