Resource Books
(Updated 4-30-2005)
Byock, Ira MD, DYING WELL: the prospect for growth at the end of life: Riverhead, 1997 Read about this book
Lynn, Joanne MD, HANDBOOK FOR MORTALS, Guidance for People Facing Serious Illness: George Washington University, 1999. Read this book's contents in a popup window
Morris, Virginia, TALKING ABOUT DEATH WON'T KILL YOU, a book on reclaiming the forgotten art of dying well. Workman Publishing, New York, 2001. Click here to order this book
Byock, Ira MD, THE FOUR THINGS THAT MATTER MOST, a book about our most valuable possessions-the relationships with those we love. Free Press, 2004. Read about this book
Dunn, Hank. HARD CHOICES FOR LOVING PEOPLE: CPR, Artificial Feeding, Comfort Care, and the Patient with a Life-Threatening Illness. Available in Spanish and English. It covers the most common medical treatment decisions faced by those who are living with a life-threatening illness. www.hardchoices.com
McCue, Kathleen, HOW TO HELP CHILDREN THROUGH A PARENT'S SERIOUS ILLNESS, Supportive, practical advice from a leading child life specialist. St. Martin's Griffin, 1994. Click here to see sample pages of this book.
Callanan, Maggie and Kelley, Patricia, FINAL GIFTS, Understanding the special awareness, needs, and communications of the dying. Bantam Books, 1997. Click here to order this book
Hallenbeck, James L. MD, PALLIATIVE CARE PERSPECTIVES, resource for physicians and clinicians of palliative care. Oxford University Press, 2003. Read this book's contents in a popup window
Lynn, Joanne MD, Schuster, Janice Lynch, Kabcenell, Andrea, IMPROVING CARE FOR THE END OF LIFE, a sourcebook for health care managers and clinicians, Oxford University Press, 2000. Read this book's contents in a popup window
Colby, William H., LONG GOODBYE, The deaths of Nancy Cruzan, Hay House, 2002. More about this book
McLeod, Beth Witrogen (Editor), AND THOU SHALT HONOR, The Caregiver's Companion, St. Martin's Press, 2002
Ray, M. Catherine, I'M WITH YOU NOW, a guide through incurable illness for patients, families and friends, Bantam Books, 1997
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www.permanente.net/doctor/menkin Dr. Elizabeth S. Menkin's, Medical Director of Coda Alliance, website. Click "Forms and Handouts" for Adv Directive forms and one page handouts on tube feeding and CPR.
www.abanet.org/aging/ American Bar Association's Commission on Law and Aging. Many resources relating to elderly, including a Consumer's Tool Kit for Health Care Advance Planning that can be downloaded.
NHPCO's Advance Directives information page has a link to other states' advance directives forms, as well as links for brochures and a toll-free help line. www.nhpco.org is the home page.
www.midbio.org/mbc-cc.htm Center for Practical Bioethics offers Caring Conversations planning documents (Eng/Spanish).
www.ethicalwill.com Ethical wills are a way to share your values, blessings, life's lessons, hopes and dreams for the future, love, and forgiveness with your family.
www.finalchoices.calhealth.org California Coalition for Compassionate Care is a statewide partnership of over 35 regional and statewide organizations dedicated to the advancement of palliative medicine and end-of-life care in California. The website has many resources on Advance Directives education
www.growthhouse.org Growth House is an international gateway to resources for life-threatening illness and end-of-life issues.
www.eperc.mcw.edu End-of-life / Palliative Education Resource Center assists physicians and other educators involved in all aspects of physician end of life (EOL) education You may submit your educational materials for peer review and potential inclusion on the site. This is the site has the Fast Facts series.
www.medicaring.org Access information about effective quality improvement initiatives.
A timeline of the EOL care movement Check out this other point of view. This website, maintained by LifeTree, Inc, a pro-life Christian educational ministry, has a very interesting and thorough timeline history of the end-of-life care movement from 1964 to the end of 2004. [It takes four "Page Down" keystrokes to get to it] They tag with icons the two predominant wings of the movement: those that support physician-assisted suicide and those that do not. They do not note the demise of Last Acts, and due to the flux in the organizations cited, many URL links are non-functional.
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1. El Camino Hospital Resource Center - Advance Care Planning Counseling(one-on-one) - 650-988-7622 - www.elcaminohospital.org OR Betsy Carpenter - 650- 424-4395 (home)
2. California Transplant Donor Network - Organ and Tissue Donation - 888-570-9400 - www.ctdn.org
3. Council On Aging - Care Access - Information, Advice and Services for Seniors in Santa Clara County - 1-800-510-2020 - www.careaccess.org
4. Five Wishes National Advance Directive (English and Spanish) - Aging with Dignity - 1-888-594-7437 - www.agingwithdignity.org
5. ‘Finding Your Way' and ‘Mrs. Lee's Story' (Chinese/English) - Sacramento Healthcare Decisions - 916-851-2828 - www.sachealthdecisions.org
6. ‘Issues in Ethics' - Santa Clara University, Markkula Center for Applied Ethics, 500 El Camino Real, Santa Clara, CA 95053, www.scu.edu/ethics
7. ‘Qur'an Recitation' - South Bay Islamic Association - 408-947-9389 - imamtahir@yahoo.com
8. Advance Healthcare Directive (Chinese) - Amitabha Buddhist Society - 408-736-3386.
9. Advance Healthcare Directive (Spanish/Vietnamese) - Santa Clara Valley Medical Center, Social Services, (408) 885-5500.