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Chair Richard Dubinsky, M.D. Department of Neurology University of Kansas Medical Center 3901 Rainbow Blvd. Kansas City, KS 66160 Phone: (913) 588-6984 Rdubinsky@safetyresearch.com Members |
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Tetsuo Ashizawa, M.D. Professor and Chairman Department of Neurology The University of Texas Medical Branch Galveston, TX |
Gary Barg Editor in Chief, Today's Caregiver Caregiver Media Group Hollywood, FL |
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H. Taylor Butler, LCSW Emory University School of Medicine Wesley Woods Health Center Atlanta, GA |
Carol Clerico Therapy Educator Coordinator University of Virginia Health System Charlottesville, VA |
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Peter Como, Ph.D. Co-Director of HDSA Center of Excellence University of Rochester Medical Center Rochester, NY |
Brookes D. Cowan, Ph.D. MSW Department of Sociology University of Vermont Burlington, VT |
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Charles Diggs, Ph.D. Director, State and Consumer Advocacy American Speech-Language-Hearing Association Rockville, MD |
Barbara Heiman, MSW/LISW HDSA Center of Excellence Ohio State University Columbus, OH |
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Bruce Jennings Senior Research Scholar The Hastings Center Garrison, NY |
Marilee Monnot, Ph.D. Assistant Professor Department of Neurology Oklahoma University Health Sciences Ctr Oklahoma City, OK |
| Martha Nance, M.D. Director of HDSA Center of Excellence Hennepin County Medical Center Minneapolis, MN |
Frances Saldana Caregiver Fountain Valley, CA |
| Kathleen Shannon, M.D. Associate Professor Rush-Presbyterian-St. Luke's Medical Center Chicago, IL |
Teresa Tempkin, RNC, MSN, ANP HDSA Center of Excellence UC Davis Medical Center Sacramento, CA |
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Huntington's Disease Society of America | |
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Barbara Boyle National Executive Director/CEO Huntington's Disease Society of America New York, NY |
Debra Lovecky Director, Communications, Education and Center Programs Huntington's Disease Society of America New York, NY |
Promoting Excellence in End-of-Life Care is a national program of The Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.