Name:
University of Chicago: PEACE - After Death Family Interview
Description:
This interview is for family members of patients with dementia who have died,
used in part to evaluate care delivered to PEACE enrollees.
Category:
Evaluation - Satisfaction/Perception of Care
Source:
Palliative Excellence in Alzheimer's Care Efforts (PEACE)
University of Chicago Medical Center
Section of Geriatrics (MC 6098)
5841 South Maryland Ave.
Chicago, IL 60637
Contact:
Gavin W. Hougham, Research Director
ghougham@medicine.bsd.uchicago.edu
Greg A. Sachs, Chief, Section of Geriatrics
gsachs@medicine.bsd.uchicago.edu
How the grantee used this instrument:
Some months after the death of a PEACE patient enrollee, we interviewed the
surviving family caregivers, usually by telephone. In part, we used the interview
to evaluate the care delivered to PEACE enrollees, but we added many additional
questions, for example, about the caregiver grieving process.
Keywords:
after-death, post-death, caregiver survey, caregiver experience, bereavement
To use this tool:
This tool draws items from several published instruments (see references below).
You may need to seek permission from the original authors before using this
tool.
References:
Items Obtained from the medical record:
Luchins, DJ, Hanrahan, P, & Murphy, K,"Criteria for enrolling dementia patients in hospice." Journal of American Geriatric Society 1997;45:1054-1059.
Reisberg, B, "Functional Assessment Staging (FAST)." Psychopharmacology Bulletin 1988;24:653-659. Staging of dementia severity.
Hughes, CP, Berg, L, Danziger, WL, et al. "A new clinical scale for the staging of dementia." British Journal of Psychiatry 1982;140:566-572.
Charlson, ME, Pompei, P, Ales, KL, & MacKenzie, CR "A new method of classifying prognostic comorbidity in longitudinal studies: development and validation." Journal of Chronic Diseases 1987;40:373-383.
Items obtained from patient interview/observation:
Toolkit of Instruments to Measure End of Life Care (http://www.chcr.brown.edu/pcoc/toolkit.htm)
Yesavage, JA, Brink, TL, & Tose, TL, "Development and validation of a geriatric depression scale: a preliminary report." Journal of Psychiatric Research 1983;17:37-49.
Folstein, MF, Folstein, SE, & McHugh, PR, "Mini-mental state:A practical method for grading the cognitive state of patients for the clinician." Journal of Psychiatric Research 1975;12;12:189-198.
Feldt, KS, Ryden, MB, & Miles, S, "Treatment of pain in cognitively impaired compared with cognitively intact older adults with hip fracture." Journal of American GeriatricSociety 1998;46:1079-1085.
Herr, KA, & Mobily, PR. "Comparison of selected pain assessment tools for
use with the elderly." Applied Nursing Research 1993;6:39-46.
Items obtained from caregiver interview:
Toolkit of instruments to Measure End of Life Care (http://www.chcr.brown.edu/pcoc/toolkit.htm).
Teri, L, Truax, P, Logsdon, R, et al, "Assessment of behavioral problems in dementia; the revised memory and behavior problems checklist." Psychology of Aging 1992;7:622-631.
Cohen-Mansfield, J, "Agitated behaviors in the elderly:II. Preliminary results in the cognitively deteriorated.: Journal of American GeriatricSociety 1986;34:344-348.
Beck, AT, & Beck, RW, "Screening depressed patients in family practice: a rapid technique." Postgraduate Medicine 1972;52:81-85.
Katz, S, Ford, AB, Moskowitz, RW, et al, "Studies of illness in the aged: the
index of ADL." The Journal of the American Medical Association 1963;185:914-919.
Instrumental Activities of Daily Living (ADLs).
Lawton, MP, & Brody, EM. "Assessment of older people: self-maintaining and
instrumental activities of daily living." Gerontologist 1969;9:179-186.
To view this tool:
Left click on the download link to view the PDF document in your Web browser.
Right-click on the download link to save the document to your computer.
PDF 47 KB / 10 pages (Viewing
PDF files requires downloading and installation of the free Adobe
Acrobat Reader.)
Posted September 2004
University of Chicago: PEACE overview page
# UCP10, type:satisfaction/perception_care
Promoting Excellence in End-of-Life Care is a national program of The Robert Wood Johnson Foundation dedicated to long-term changes in health care institutions to substantially improve care for dying people and their families. Visit PromotingExcellence.org for more resources.
