Title: Fast Fact and Concept #47: What Do I Tell the Children?
Author(s): Paula Rauch; Robert Arnold
The dying of a young adult is always difficult, even more so when there are young children survivors. A common question asked by the dying adult or their family members is, "what/how do I tell the children". Physicians and other health care providers can provide leadership and guidance to help young families through this crisis.
I. Screening and awareness
- Ask if the ill person has children at home; ask about their age, personality, and coping style;
- Ask what the ill person has told the children about the illness
- Ask if they have a specific worry about the child
- Ask if the child has had recent problems in school, at home or with relationships
- Ask who the they would like to talk to if they have concerns
II. Give them some words.
Often a parent's biggest worry is what to say if the child asks if he or she is dying. Here are two examples of words a parent might use. Asking a parent if these words would feel comfortable to say can begin a dialogue between patient and clinician to arrive at language that is honest, and life affirming.
"X can kill people, but I am taking the best care of myself I can. I am following the doctor's plan so that I can live as long as possible." Or
"Even with trying my hardest and getting the best possible care, my ____ is getting worse; still I plan to live every day."
III. Give adults concrete examples to guide their interactions.
1. Express interest in the child's day.
2. Work to maintain normal routines (e.g. maintain family rituals: Friday night supper, Monday night pizza, watching Jeopardy together).
3. Welcome all questions but do not force discussions. Make sure you understand the real question before answering; take your time to think about how you want to answer.
4. Overhearing bad news is the worst way to hear it. Talk with children from diagnosis onward, being sure to give updates when there are changes in prognosis or treatment.
5. Avoid euphemisms (e.g. lump, boo-boo or sickness) that may confuse children.
6. Ask children to share what they are thinking, or hear from others, so they do not worry alone.
7. Prepare children for visits with the sick person. Describe what they are likely to see. Bring along another adult who is comfortable to stay only as long as the child wants. Bring along markers and paper, so children can leave the parent with a picture or message.
8. Talk to the child's teacher or guidance counselor to alert the teachers. Ask teachers and the child's friends' parents to let the parent know if the child talks about worries.
IV. Refer adults to one of the popular books on the subject (Kroen, McCue)
V. Know the resources for parents and children in your hospital and community
VI. Consider referral to a mental health professional when:
1. symptoms of depression, or anxiety that interfere with school, home or with peers;
2. there is risk taking behavior;
3. there is significant discord between the child and the surviving parent;
4. there is significant discord between the parents; or
5. the child says he or she wants to talk to someone outside of the family.
References:Rauch, P. (2000). Comment: Supporting the Child within the Family. The Journal of Clinical Ethics 2000; 11: 169-170.
Copyright Notice: Users are free to download and distribute Fast Facts for educational purposes only. Citation for referencing: Rauch P and Arnold R. Fast Facts and Concepts #47: What do I tell the children? August, 2001. End-of-Life Physician Education Resource Center www.eperc.mcw.edu.
Fast Facts and Concepts was originally developed as an end-of-life teaching tool by Eric Warm, MD, U. Cincinnati, Department of Medicine. See: Warm, E. Improving EOL care--internal medicine curriculum project. J Pall Med 1999; 2: 339- 340.
Disclaimer: Fast Facts provide educational information, this information is not medical advice. Health care providers should exercise their own independent clinical judgment. Some Fast Fact information cites the use of a product in dosage, for an indication, or in a manner other than that recommended in the product labeling. Accordingly, the official prescribing information should be consulted before any such product is used.
Creation Date: 8/2001
|Training: Fellows, 1st/2nd Year Medical Students, 3rd/4th Year Medical Students, PGY1 (Interns), PGY2-6, Physicians in Practice|
|Specialty: Family Medicine, General Internal Medicine, Geriatrics, Hematology/Oncology, Pediatrics, Psychiatry|
|Non-Physician: Clergy/Chaplains, Graduate Students, Patients/Families, Nurses, Social Workers|
ACGME Competencies: Interpersonal and Communication Skills, Patient Care
Keyword(s): Care for children of dying adults, Communications skills, Death pronouncement, Discussing hospice care, Family conference, Giving bad news, Grief/bereavement, Negotiating treatment goals, Pediatric, Personal reflection, Prognosis
The Fast Facts series is distributed for educational use only and does not constitute medical advice. For the most current version of Fast Facts visit the EPERC web site at www.eperc.mcw.edu. This mirror version is provided subject to copyright restrictions for educational use within the Inter-Instutional Collaborating Network on End-of-Life Care (IICN).